Family Resources

The following are links to organizations that provide resources for families that may be appropriate for individuals with deafblindness.

American Society for Deaf Children — Helping families raising children who are deaf or hard of hearing since 1967.

Center for the Visually Impaired Early Childhood — The BEGIN program combines individual intervention training, class lessons, preschool transition classes, and family information and support to help the children reach their full potential.

Center for the Visually Impaired Youth Services — STARS (Social, Therapeutic, Academic and Recreational Services) is an innovative program for students ages six to 21 who are blind or visually impaired. The objectives of the STARS program are to promote social interaction, increase community access opportunities, encourage healthy lifelong recreational habits, build leadership and social skills and promote appropriate independent living skills.

CHARGE Syndrome Foundation — The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families;

The Communication Matrix — FREE and easy to use assessment instrument designed for individuals of all ages who function at the earliest stages of communication and who use any form of communication.

Family Connect: Raising A Visually Impaired Child—An online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and link to local resources.

FOCUS: Families of Children Under Stress —FOCUS provides emotional, informational, and physical support to parents of children with disabilities or with ongoing medical needs.

GA CHARGE Network Listserve — exclusively for the parents and guardians of children of all ages with CHARGE Syndrome in the state of Georgia for open discussion among members to share information, resources, & experiences. This is a network that also encourages peer support, educational acquisition and advocacy.

GA—ParentNetwork Listserve — The GA—ParentNetwork is designed exclusively for parents/guardians of children with disabilities in the state of Georgia.

Georgia Community Support & Solutions / Family Support — offers a variety of supports and services focused on assisting families and keeping their loved ones at home. The exact services provided for each family will vary depending on their needs.

Georgia Council on Developmental Disabilities — While the GCDD does not provide direct services, they often act as a convener for agencies, individuals, family members and supporters to develop coordinated public policy.

Georgia Council for the Hearing Impaired (GaCHI) — To establish and maintain a network of statewide services for the deaf, hard of hearing, late deafened, deaf—blind and other individuals and groups

Georgia Hands & Voices —dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. Hands & Voices is a non—profit, parent—driven national organization dedicated to supporting families of children who are deaf or hard of hearing.

The Georgia Organization of Parents of Blind Children — The Georgia Organization of Parents of Blind Children is a division of the NFB of Georgia, and is affiliated with the National Organization of Parents of Blind Children, a national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information. We believe the real problem of blindness is not the loss of eyesight. The real problem is the misunderstanding and lack of information which exist. With proper training and opportunity, blindness can be reduced to a physical nuisance.

Georgia PINES — A statewide early intervention program, begun in 1980, for families of children birth to five years of age with a diagnosed hearing impairment and/or a visual impairment.

Hands & Voices —Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of Hearing without a bias around communication modes or methodology. We’re a parent—driven, non—profit organization providing families with the resources, networks, and information. professional collaborative group

Helen Keller National Center for Deaf—Blind Youth & Adults — This national organization provides advocacy, assessment, consultation, community education, family support, professional training workshops, information, referral, and support groups.
Georgia office: (404) 766—9625 (voice), (404) 766—2820 (TTY)

Home Talk Assessment of Children Who are Deaf—Blind (available in English and Spanish) — HomeTalk is an assessment tool for parents and care providers of children who are deafblind and who have other disabilities. Its purpose is to help you participate in the planning of your child’s educational program.

Lekotek of Georgia —Lekotek offers a wide range of services for children with disabilities and their families. Many activities involve the use of computers or toys adapted especially for a particular child’s needs. Support groups are available for moms, dads, and grandparents. Lekotek also provides consultation and training services for professionals and parents.

Minnesota Deafblind Project Parent Road Map — A guide to raising a child with combined hearing and vision losses.

National Association of Parents of Children with VI (NAPVI) — See also Family Connect — NAPVI and the American Foundation for the Blind (AFB) are so pleased to bring you our web site,www.FamilyConnect.org, an online, multimedia community for parents and guardians of children with visual impairments.FamilyConnect gives parents, grandparents and other caretakers a place to find comprehensive resources and support 24 hours a day, with access to message boards where they can talk to other parents, compelling videos featuring real—life families, parenting articles, a mom—authored blog, and links to local resources. The site also features sections dedicated to multiple disabilities, technology, education, and every age group from infants to teens. Visitors towww.FamilyConnect.orgcan also create a personal profile and receive information on news and events based on their child’s age, eye condition, and location.
Texas School for the Blind & Visually Impaired See/Hear Newsletter —Available in English & Spanish.

National Consortium on Deaf—Blindness (NCDB) — The National Consortium on Deaf—Blindness (NCDB) is a national technical assistance and dissemination center for children and youth who are deaf—blind. NCDB works collaboratively with families, federal, state and local agencies to provide technical assistance, information and personnel training.

 

National Family Association for Deaf—Blind (NFADB) — The National Family Association for Deaf—Blind (NFADB) is a non—profit, volunteer—based family association. We are the largest national network of families focusing on issues surrounding deaf blindness.

Parent to Parent of Georgia Roadmap to Services — Parent to Parent of Georgia provides support and information services and training and leadership opportunities for families who have children and youth with disabilities.

Project SPARKLE: Supporting Parents Access to Knowledge, Linkages & Education — Project SPARKLE is a program of individualized learning that enhances the ability of parents of children who are deafblind to fulfill their roles in the development and education of their children. Through Project SPARKLE, parents will have access to information, training, and resources in their homes via DVD technology and the Internet.

Understanding the NOW & COMP Waivers: A Ready Reference Guide for Families — The NOW and COMP Waivers are resources that can help provide supports to people who want to live with their family or in other kinds of community living arrangements. The services offered through these waivers can make it possible to have supports during the day, at night, or on the weekends.